left-handed

Adapting

Adapting

Have you ever stumbled on a wooded path in autumn?  The brightly colored leaves begin to obscure the well-worn trail, and the abundant acorns act like mini-rollers underfoot, making conditions ripe for an awkward misstep. I went down today; tumbled right off the...

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Dancing trees

Dancing trees

I look forward to my daily morning contemplation.  A cup of coffee in a favorite mug.  DeltaMae at my feet.  And a sweet bit of time to embody stillness, silence, solitude, and an open heart I call space.   Each morning's experience is unique.  Many mornings...

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Sacred questions

Sacred questions

Recently I took part in a Tim Lowry ALS panel for occupational therapy (OT) students.  As panelists we answered many of the questions you might anticipate about how OT has improved our lives with ALS.  I was happy to tell the students about pencil grips, rocker...

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Holy tears

Holy tears

Tender soothing rain all night last night lingers unto morning like sweet tears to begin this day anew and whole. I did not grow up in a culture of sweet tears, the kind that flow gently down the cheek, as plainly and innocently as a smirk might linger while...

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Patients Come First Podcast with Dr. Jim Plews-Ogan

This episode of VHHA's Patients Come First podcast features Dr. Jim Plews-Ogan, a pediatrician retired from UVA Health, for a conversation about his career, how he is managing a recent ALS diagnosis, his advocacy work to support disease research funding, and much more.

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ALSPLS

ALSPLS

ALS is always a grim tale to tell, and to hear.  Sorry. What if we could tell a parallel ALS tale that was the opposite of grim?  I have an idea.  Read on. ALS, Amyotrophic Lateral Sclerosis, is generally defined as a progressive, neurodegenerative illness with no...

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The media

The media

The Hummingbird Fund is gaining notice which makes me really happy.  Our mission is clear, and dare I say boldly stated: Ending ALS. Starting with all of us. The Hummingbird Fund stands on three pillars: access, innovation, and advocacy. We are on a mission to end...

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