documentary

Dreaming

Dreaming

My friends tell me they also have trouble sleeping through the night. Age, they say, or their bladder, or the dreaded foot cramps that send them hopping to the kitchen for mustard.  Sleep woes are common among the ALS crowd. Impaired mobility aggravates muscle...

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Writing with EyeGaze

Writing with EyeGaze

To my surprise and delight, I believe I may have developed a following of regular readers. A tiny, loyal readership. You know who you are. You are the kind souls who  ask about the next post, adding that you have missed hearing from  me. “No pressure,” you say, “we...

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Hummingbird Fund Partners with I AM ALS

Hummingbird Fund Partners with I AM ALS

Partnership Will Accelerate ALS Therapy Approvals and Access (November 27, 2023, Washington, D.C.) We are thrilled to announce a new collaboration between I AM ALS and The Hummingbird Fund, a milestone towards achieving our shared mission of ending ALS through...

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Peggy Testifies Before Senate

Peggy Testifies Before Senate

In late October, Peggy Plews-Ogan testified before the Senate Special Aging Committee. This was a hearing on research and treatment for rare diseases. Dr. Plews-Ogan a physician at UVA Health, gave moving testimony about her family's experience with Jim's 2021 AL...

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Compassion as Action

Compassion as Action

Peggy will soon publish her most recent scholarly article, entitled “Changing the paradigm: practical wisdom as true north in medical education”. It will appear in a special issue of the Journal of Medicine and Philosophy. In the article Peggy explores the...

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How are you doing, Mr. ALS?

How are you doing, Mr. ALS?

I have lived and worked and raised my children in the same small city for the last 23 years.  I cannot go anywhere without bumping into someone I know.  Now that Mr. ALS is a constant companion, he gets introduced or re-introduced like you might introduce your grown...

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Home again

Home again

I woke up this morning in my own bed.  A pileated woodpecker, rapping on the side of our log cabin, drew me from a restful slumber that had spanned nearly 12 hours.  We arrived home late last night, having driven all the way from Boston, closing out a steady stream of...

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