crystal lake

In Memory of Jim

In Memory of Jim

We created this page as a place for those who love Jim to share memories, stories, and anecdotes about him. All comments and stories submitted will be posted publicly as a comment below. This page will remain up on the website as a testament to Jim’s incredible...

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In Memory of Jim

We Remember Jim

Jim's funeral will be held on Sunday, July 21, at 2pm at St. Paul's Memorial Church in Charlottesville. A reception will follow where friends and loved ones are invited to share stories about Jim on an open mic. All are welcome. If you're unable to attend his funeral...

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Heaven

Do you ever think about heaven? I do. I ask, knowing full well that heaven can be a loaded topic. Age-old questions loom large over its very nature. Is there a heaven? Where is it? What’s it like? Are there entrance criteria? Are dogs and horses allowed? According to...

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Two toasts

Two toasts

Peggy is truly the public speaker in the family, even though she is the most introverted. Her leadership positions have necessitated planned speeches in large public settings, extemporaneous remarks at dinners, and many toasts. She has all the experience and none of...

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Inaugural #Go50forALS a Huge Success!

Inaugural #Go50forALS a Huge Success!

We are so thrilled to share the results of our inaugural #Go50forALS movement challenge, which took place in early May. Movement challenges and community classes continued throughout the month of May, as did your support of the Hummingbird Fund, so we are just now...

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Listening to Schubert’s Great Symphony in C

Listening to Schubert’s Great Symphony in C

On occasion I forget that I have ALS. More accurately, I forget that I have significant ALS-related disabilities. A prime example occurs when I try to speak after I have been writing for a while. I open my mouth, fully expecting to speak with the same fluency I have...

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Somebody’s Work

Somebody’s Work

As you might imagine, my notions of work and purpose changed radically when I retired prematurely due to ALS. I had spent my adult life describing my work as a vocation, because I derived a deep purpose from my role as a nurse and as a pediatrician. I experienced a...

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Resilience and Ingenuity

Resilience and Ingenuity

This morning I made William laugh using eyegaze.  This is very good news. My ability to be understood these days, even by those closest to me, is dicey at best. The weakened muscles of my face and mouth limit comprehensible articulation, and weakened breathing limits...

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Hummingbird Fund Invites You to #Go50forALS!

Hummingbird Fund Invites You to #Go50forALS!

This May 5-11, the Hummingbird Fund invites you to #go50forALS by challenging yourself and your community to move in any increment of 50 and raise money to end ALS while you do it! Sign up and learn more online. We want you or your team to sign up for this #go50forALS...

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Growing Through Adversity: Adaptability

Growing Through Adversity: Adaptability

In a post titled Seeking Wisdom: Purpose and the TurboCharged Life, published in February, I introduced the ALS-TLS. The “TLS”, or turbocharged living scale, is a 12-item questionnaire meant to track personal growth, or flourishing in people affected by ALS (available...

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Featured Post

Heaven

Do you ever think about heaven? I do. I ask, knowing full well that heaven can be a loaded topic. Age-old questions loom large over its very nature. Is there a heaven? Where is it? What’s it like? Are there entrance criteria? Are dogs and horses allowed? According to...

read more