contemplation

Resilience and Ingenuity

Resilience and Ingenuity

This morning I made William laugh using eyegaze.  This is very good news. My ability to be understood these days, even by those closest to me, is dicey at best. The weakened muscles of my face and mouth limit comprehensible articulation, and weakened breathing limits...

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Hummingbird Fund Invites You to #Go50forALS!

Hummingbird Fund Invites You to #Go50forALS!

This May 5-11, the Hummingbird Fund invites you to #go50forALS by challenging yourself and your community to move in any increment of 50 and raise money to end ALS while you do it! Sign up and learn more online. We want you or your team to sign up for this #go50forALS...

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Growing Through Adversity: Adaptability

Growing Through Adversity: Adaptability

In a post titled Seeking Wisdom: Purpose and the TurboCharged Life, published in February, I introduced the ALS-TLS. The “TLS”, or turbocharged living scale, is a 12-item questionnaire meant to track personal growth, or flourishing in people affected by ALS (available...

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Withering

Withering

I am here to proclaim that withering has gotten a bum rap. Here’s why. I move indoors for contemplation during winter. From a south facing window I can see an overgrown trail that meanders down the hill, through the trees, leading to a small creek that freezes on the...

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Seeking Wisdom: Purpose and the TurboCharged Life

Seeking Wisdom: Purpose and the TurboCharged Life

This article, written by Jim and Peggy Plews-Ogan, was published by the University of Notre Dame's Center for Social Concerns and their Virtues and Vocations publication. You can view the original article online.  On December 2, 2021, our lives cracked open. Jim was...

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Dreaming

Dreaming

My friends tell me they also have trouble sleeping through the night. Age, they say, or their bladder, or the dreaded foot cramps that send them hopping to the kitchen for mustard.  Sleep woes are common among the ALS crowd. Impaired mobility aggravates muscle...

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Writing with EyeGaze

Writing with EyeGaze

To my surprise and delight, I believe I may have developed a following of regular readers. A tiny, loyal readership. You know who you are. You are the kind souls who  ask about the next post, adding that you have missed hearing from  me. “No pressure,” you say, “we...

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Hummingbird Fund Partners with I AM ALS

Hummingbird Fund Partners with I AM ALS

Partnership Will Accelerate ALS Therapy Approvals and Access (November 27, 2023, Washington, D.C.) We are thrilled to announce a new collaboration between I AM ALS and The Hummingbird Fund, a milestone towards achieving our shared mission of ending ALS through...

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Peggy Testifies Before Senate

Peggy Testifies Before Senate

In late October, Peggy Plews-Ogan testified before the Senate Special Aging Committee. This was a hearing on research and treatment for rare diseases. Dr. Plews-Ogan a physician at UVA Health, gave moving testimony about her family's experience with Jim's 2021 AL...

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Featured Post

Resilience and Ingenuity

Resilience and Ingenuity

This morning I made William laugh using eyegaze.  This is very good news. My ability to be understood these days, even by those closest to me, is dicey at best. The weakened muscles of my face and mouth limit comprehensible articulation, and weakened breathing limits...

read more