This morning I made William laugh using eyegaze. This is very good news. My ability to be understood these days, even by those closest to me, is dicey at best. The weakened muscles of my face and mouth limit comprehensible articulation, and weakened breathing limits...
In a post titled Seeking Wisdom: Purpose and the TurboCharged Life, published in February, I introduced the ALS-TLS. The “TLS”, or turbocharged living scale, is a 12-item questionnaire meant to track personal growth, or flourishing in people affected by ALS (available...
Today, we mark two years since our beloved Jim passed away. Our Plews-Ogan family, including Rowan and baby Phoebe, Erin and Hal, and Will and Monika, are gathering for the weekend as we will every year. This year, we’re in Minneapolis. The time together has given us...