In late October, Peggy Plews-Ogan testified before the Senate Special Aging Committee. This was a hearing on research and treatment for rare diseases. Dr. Plews-Ogan a physician at UVA Health, gave moving testimony about her family’s experience with Jim’s 2021 AL diagnosis. You can watch the 6-minute video clip here.
Peggy’s testimony is part of the Hummingbird Fund’s support of the Promising Pathway Act, which was introduced in the U.S. Senate in June 2023. Learn more about this Act and how you can contact your legislators to take legislative action on the I AM ALS website.