Press & Media
Hummingbird Fund Partners with I AM ALS
Partnership Will Accelerate ALS Therapy Approvals and Access (November 27, 2023, Washington, D.C.) We are thrilled to announce a new collaboration between I AM ALS and The Hummingbird Fund, a milestone towards achieving our shared mission of ending ALS through...
Peggy Testifies Before Senate
In late October, Peggy Plews-Ogan testified before the Senate Special Aging Committee. This was a hearing on research and treatment for rare diseases. Dr. Plews-Ogan a physician at UVA Health, gave moving testimony about her family's experience with Jim's 2021 ALS...
Hummingbird Fund to Sponsor “No Ordinary Campaign” at Virginia Film Festival
We're thrilled to announce our sponsorship of "No Ordinary Campaign" as part of the Virginia Film Festival (VAFF). "No Ordinary Campaign" will premiere at the VAFF on Sunday, October 29, at 2pm at UVA's Culbreth Theater. The building is accessible and there's a...
Hummingbird Fund to Co-Sponsor “Go On, Be Brave” Film on 9/23
The Hummingbird Fund is proud to be a co-sponsor of the upcoming documentary film screening of "Go On, Be Brave," presented by The Team Drea Foundation. The screening will take place on Saturday, September 23, at 7 p.m. at the Paramount Theater in Charlottesville, Va....
I’m Dying to Tell You: Tackling Tough Conversations about ALS (Part 1/2 Podcast Feature)
Lorri Carey talks with Amy, Jim and Matt who are living with ALS about having the toughest conversations of their lives.
Save the Date for the Launch of Starr Hill’s Hummingbird Ale August 5
The Hummingbird Fund will partner with Starr Hill Brewery this August to raise money for ALS research. Starr Hill is brewing a “Hummingbird Ale” and hosting a release party on Saturday, August 5, at both the Crozet and Charlottesville tap rooms to celebrate this new...
As ALS does its worst, Patrick Behan keeps coaching and keeps fighting
St. John’s Coach Patrick Behan directs his team during a DCSAA semifinal matchup Friday. (Jonathan Newton/The Washington Post This guy does not give up, on the court or off. Read the Washington Post article here.
Sharing the Language of ALS with Dr. Plews-Ogan and Dr. Richard Bedlack
Amyotrophic Lateral Sclerosis (ALS) is an incurable, progressive neuro-degenerative disease, affecting roughly 20,000 thousand patients and their families in the United States today.
2022 McGehee Lecture with Jim Plews-Ogan, MD
On November 17, 2022, Dr. Ogan gave the McGehee Lecture at UVA School of Nursing. To watch the lecture and hear him speak on the Therapeutic Use of Self in the Land of ALS, use the link below.
FDA approves first ALS drug in 5 years after pleas from patients
The Food and Drug Administration on Thursday overcame doubts from agency scientists and approved a fiercely debated drug for ALS, a move that heartened patients and advocates who pushed for the medication but raised concerns among some experts about whether treatments...
Meeting of the Peripheral and Central Nervous System Drugs Advisory Committee
The committee will discuss new drug application (NDA) 216660, for sodium phenylbutyrate/taurursodiol (AMX0035) powder for oral suspension, submitted by Amylyx Pharmaceuticals Inc., for the treatment of amyotrophic lateral sclerosis (ALS).
Patients Come First Podcast – Dr. Jim Plews-Ogan Podcast Feature
This episode of VHHA’s Patients Come First podcast features Dr. Jim Plews-Ogan, a pediatrician retired from UVA Health, for a conversation about his career, how he is managing a recent ALS diagnosis, his advocacy work to support disease research funding, and much...