News
Hummingbird Fund Partners with I AM ALS
Partnership Will Accelerate ALS Therapy Approvals and Access (November 27, 2023, Washington, D.C.) We are thrilled to announce a new collaboration between I AM ALS and The Hummingbird Fund, a milestone towards achieving our shared mission of ending ALS through...
Hummingbird Fund Partners with I AM ALS
Partnership Will Accelerate ALS Therapy Approvals and Access (November 27, 2023, Washington, D.C.) We are thrilled to announce a new collaboration between I AM ALS and The Hummingbird Fund, a milestone towards achieving our shared mission of ending ALS through...
Hummingbird Fund to Sponsor “No Ordinary Campaign” at Virginia Film Festival
We're thrilled to announce our sponsorship of "No Ordinary Campaign" as part of the Virginia Film Festival (VAFF). "No Ordinary Campaign" will premiere at the VAFF on Sunday, October 29, at 2pm at UVA's Culbreth Theater. The building is accessible and there's a...
Hummingbird Fund to Co-Sponsor “Go On, Be Brave” Film on 9/23
The Hummingbird Fund is proud to be a co-sponsor of the upcoming documentary film screening of "Go On, Be Brave," presented by The Team Drea Foundation. The screening will take place on Saturday, September 23, at 7 p.m. at the Paramount Theater in Charlottesville, Va....
Save the Date for the Launch of Starr Hill’s Hummingbird Ale August 5
The Hummingbird Fund will partner with Starr Hill Brewery this August to raise money for ALS research. Starr Hill is brewing a “Hummingbird Ale” and hosting a release party on Saturday, August 5, at both the Crozet and Charlottesville tap rooms to celebrate this new...
As ALS does its worst, Patrick Behan keeps coaching and keeps fighting
St. John’s Coach Patrick Behan directs his team during a DCSAA semifinal matchup Friday. (Jonathan Newton/The Washington Post This guy does not give up, on the court or off. Read the Washington Post article here.
Sharing the Language of ALS with Dr. Plews-Ogan and Dr. Richard Bedlack
Amyotrophic Lateral Sclerosis (ALS) is an incurable, progressive neuro-degenerative disease, affecting roughly 20,000 thousand patients and their families in the United States today.
Meeting of the Peripheral and Central Nervous System Drugs Advisory Committee
The committee will discuss new drug application (NDA) 216660, for sodium phenylbutyrate/taurursodiol (AMX0035) powder for oral suspension, submitted by Amylyx Pharmaceuticals Inc., for the treatment of amyotrophic lateral sclerosis (ALS).
Patients Come First Podcast with Dr. Jim Plews-Ogan
This episode of VHHA's Patients Come First podcast features Dr. Jim Plews-Ogan, a pediatrician retired from UVA Health, for a conversation about his career, how he is managing a recent ALS diagnosis, his advocacy work to support disease research funding, and much more.
Retired UVA Pediatrician Diagnosed with ALS Creates a Fund to Help Fight It
ALBEMARLE COUNTY, Va. (WVIR) - A retired pediatrician with UVA Health is working to help people battling ALS. Jim Plews-Ogan and his family created the Hummingbird Fund after he was diagnosed with ALS.
As a Pediatric Cancer Researcher, I Admired the FDA. Then I Got ALS
Amyotrophic lateral sclerosis (ALS), as I have unfortunately come to learn, is a terrible disease with no cure. Some exciting treatments are on the horizon, but the Food and Drug Administration’s Office of Neuroscience, which has the task of overseeing the development...