News

Hummingbird Fund Invites You to #Go50forALS!

This May 5-11, the Hummingbird Fund invites you to #go50forALS by challenging yourself and your community to move in any increment of 50 and raise money to end ALS while you do it! Sign up and learn more online. We want you or your team to sign up for this #go50forALS...

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Hummingbird Fund Invites You to #Go50forALS!

This May 5-11, the Hummingbird Fund invites you to #go50forALS by challenging yourself and your community to move in any increment of 50 and raise money to end ALS while you do it! Sign up and learn more online. We want you or your team to sign up for this #go50forALS...

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Seeking Wisdom: Purpose and the TurboCharged Life

This article, written by Jim and Peggy Plews-Ogan, was published by the University of Notre Dame's Center for Social Concerns and their Virtues and Vocations publication. You can view the original article online.  On December 2, 2021, our lives cracked open. Jim was...

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Hummingbird Fund Partners with I AM ALS

Partnership Will Accelerate ALS Therapy Approvals and Access (November 27, 2023, Washington, D.C.) We are thrilled to announce a new collaboration between I AM ALS and The Hummingbird Fund, a milestone towards achieving our shared mission of ending ALS through...

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Peggy Testifies Before Senate

In late October, Peggy Plews-Ogan testified before the Senate Special Aging Committee. This was a hearing on research and treatment for rare diseases. Dr. Plews-Ogan a physician at UVA Health, gave moving testimony about her family's experience with Jim's 2021 AL...

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FDA approves first ALS drug in 5 years after pleas from patients

The Food and Drug Administration on Thursday overcame doubts from agency scientists and approved a fiercely debated drug for ALS, a move that heartened patients and advocates who pushed for the medication but raised concerns among some experts about whether treatments...

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Patients Come First Podcast with Dr. Jim Plews-Ogan

This episode of VHHA's Patients Come First podcast features Dr. Jim Plews-Ogan, a pediatrician retired from UVA Health, for a conversation about his career, how he is managing a recent ALS diagnosis, his advocacy work to support disease research funding, and much more.

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