News

We Remember Jim

Jim's funeral will be held on Sunday, July 21, at 2pm at St. Paul's Memorial Church in Charlottesville. A reception will follow where friends and loved ones are invited to share stories about Jim on an open mic. All are welcome. If you're unable to attend his funeral...

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We Remember Jim

Jim's funeral will be held on Sunday, July 21, at 2pm at St. Paul's Memorial Church in Charlottesville. A reception will follow where friends and loved ones are invited to share stories about Jim on an open mic. All are welcome. If you're unable to attend his funeral...

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Inaugural #Go50forALS a Huge Success!

We are so thrilled to share the results of our inaugural #Go50forALS movement challenge, which took place in early May. Movement challenges and community classes continued throughout the month of May, as did your support of the Hummingbird Fund, so we are just now...

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Hummingbird Fund Invites You to #Go50forALS!

This May 5-11, the Hummingbird Fund invites you to #go50forALS by challenging yourself and your community to move in any increment of 50 and raise money to end ALS while you do it! Sign up and learn more online. We want you or your team to sign up for this #go50forALS...

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Seeking Wisdom: Purpose and the TurboCharged Life

This article, written by Jim and Peggy Plews-Ogan, was published by the University of Notre Dame's Center for Social Concerns and their Virtues and Vocations publication. You can view the original article online.  On December 2, 2021, our lives cracked open. Jim was...

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Hummingbird Fund Partners with I AM ALS

Partnership Will Accelerate ALS Therapy Approvals and Access (November 27, 2023, Washington, D.C.) We are thrilled to announce a new collaboration between I AM ALS and The Hummingbird Fund, a milestone towards achieving our shared mission of ending ALS through...

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Peggy Testifies Before Senate

In late October, Peggy Plews-Ogan testified before the Senate Special Aging Committee. This was a hearing on research and treatment for rare diseases. Dr. Plews-Ogan a physician at UVA Health, gave moving testimony about her family's experience with Jim's 2021 AL...

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FDA approves first ALS drug in 5 years after pleas from patients

The Food and Drug Administration on Thursday overcame doubts from agency scientists and approved a fiercely debated drug for ALS, a move that heartened patients and advocates who pushed for the medication but raised concerns among some experts about whether treatments...

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