Offering Kindness

Listening to Schubert’s Great Symphony in C

Listening to Schubert’s Great Symphony in C

On occasion I forget that I have ALS. More accurately, I forget that I have significant ALS-related disabilities. A prime example occurs when I try to speak after I have been writing for a while. I open my mouth, fully expecting to speak with the same fluency I have...

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Somebody’s Work

Somebody’s Work

As you might imagine, my notions of work and purpose changed radically when I retired prematurely due to ALS. I had spent my adult life describing my work as a vocation, because I derived a deep purpose from my role as a nurse and as a pediatrician. I experienced a...

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Resilience and Ingenuity

Resilience and Ingenuity

This morning I made William laugh using eyegaze.  This is very good news. My ability to be understood these days, even by those closest to me, is dicey at best. The weakened muscles of my face and mouth limit comprehensible articulation, and weakened breathing limits...

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