Partnership Will Accelerate ALS Therapy Approvals and Access
(November 27, 2023, Washington, D.C.) We are thrilled to announce a new collaboration between I AM ALS and The Hummingbird Fund, a milestone towards achieving our shared mission of ending ALS through revolutionary policy advocacy.
In just five years since its launch, I AM ALS has made significant strides in its mission toward treatments and cures for ALS, including procuring almost a billion dollars in new federal research funding for ALS. Still, the movement works against the clock with a laser-focused vision of the power of the community in the development of new therapies.
Funding made possible by the Hummingbird Fund will accelerate I AM ALS’s work in revolutionizing the regulatory and access landscape, allowing for a rigorous and swift road to drug development.
“We are always stronger together,” states I AM ALS CEO Andrea Goodman. “Joining forces with The Hummingbird Fund allows us to amplify our efforts and be bolder in our vision for the entire sector to work with urgency.”
Established in April 2022, The Hummingbird Fund is a renowned organization with a proven track record of serving as an accelerator for innovation in ALS research, advocacy, and overall functional support, through stable and sustainable partnerships that are family and patient-centric, and kind. I AM ALS is honored to serve as the organization’s advocacy partner and leverage an existing movement, resources, and expertise as we strengthen our federal partnerships with a focus on regulatory and access efficiencies.
I AM ALS and The Hummingbird Fund believe that partnership is crucial in addressing the real needs and gaps for people affected by ALS and we are eager for the impact we will make together. We are confident that this collaboration will not only benefit those directly affected by ALS but also inspire others to join the cause. Together, we can make a difference.
About I AM ALS
I AM ALS is a patient-centric movement revolutionizing how to end disease. The nonprofit provides critical support and resources to people with ALS, caregivers, and loved ones. We empower advocates to raise awareness and lead the movement against ALS in driving the development of treatments and cures. Founded in 2019 by husband and wife team Brian Wallach and Sandra Abrevaya, I AM ALS was born out of their desire to rewrite the ALS story for Brian and the tens of thousands of other people with ALS. Learn more at iamals.org.
About The Hummingbird Fund
The Hummingbird Fund is housed within the Charlottesville Area Community Foundation, and was founded in 2021 by Drs. Jim and Peggy Plews-Ogan. The organization serves as an accelerator for innovation in ALS research, advocacy, and overall functional support, via stable and sustainable partnerships that are patient/family centric and kind. The Hummingbird Fund aims to be flexible, enduring, and tenacious in its mission, which is threefold:
- Access: to END care gaps for patients living with ALS in our region.
- Research: to support research that is patient-centric and innovative.
- Advocacy: to support advocacy, legislative action, and research to end ALS.
The Hummingbird Fund is based in Charlottesville, VA. You can learn more online about their work in access, research, and advocacy: https://hummingbirdfundva.com/