On occasion I forget that I have ALS. More accurately, I forget that I have significant ALS-related disabilities. A prime example occurs when I try to speak after I have been writing for a while. I open my mouth, fully expecting to speak with the same fluency I have...
As you might imagine, my notions of work and purpose changed radically when I retired prematurely due to ALS. I had spent my adult life describing my work as a vocation, because I derived a deep purpose from my role as a nurse and as a pediatrician. I experienced a...
Today, we mark two years since our beloved Jim passed away. Our Plews-Ogan family, including Rowan and baby Phoebe, Erin and Hal, and Will and Monika, are gathering for the weekend as we will every year. This year, we’re in Minneapolis. The time together has given us...