I look forward to my daily morning contemplation. A cup of coffee in a favorite mug. DeltaMae at my feet. And a sweet bit of time to embody stillness, silence, solitude, and an open heart I call space. Each morning's experience is unique. Many mornings...
The Food and Drug Administration on Thursday overcame doubts from agency scientists and approved a fiercely debated drug for ALS, a move that heartened patients and advocates who pushed for the medication but raised concerns among some experts about whether treatments...
Recently I took part in a Tim Lowry ALS panel for occupational therapy (OT) students. As panelists we answered many of the questions you might anticipate about how OT has improved our lives with ALS. I was happy to tell the students about pencil grips, rocker...
The committee will discuss new drug application (NDA) 216660, for sodium phenylbutyrate/taurursodiol (AMX0035) powder for oral suspension, submitted by Amylyx Pharmaceuticals Inc., for the treatment of amyotrophic lateral sclerosis (ALS).
This episode of VHHA’s Patients Come First podcast features Dr. Jim Plews-Ogan, a pediatrician retired from UVA Health, for a conversation about his career, how he is managing a recent ALS diagnosis, his advocacy work to support disease research funding, and much...
Tender soothing rain all night last night lingers unto morning like sweet tears to begin this day anew and whole. I did not grow up in a culture of sweet tears, the kind that flow gently down the cheek, as plainly and innocently as a smirk might linger while...
This episode of VHHA's Patients Come First podcast features Dr. Jim Plews-Ogan, a pediatrician retired from UVA Health, for a conversation about his career, how he is managing a recent ALS diagnosis, his advocacy work to support disease research funding, and much more.
ALS is always a grim tale to tell, and to hear. Sorry. What if we could tell a parallel ALS tale that was the opposite of grim? I have an idea. Read on. ALS, Amyotrophic Lateral Sclerosis, is generally defined as a progressive, neurodegenerative illness with no...
Today, we mark two years since our beloved Jim passed away. Our Plews-Ogan family, including Rowan and baby Phoebe, Erin and Hal, and Will and Monika, are gathering for the weekend as we will every year. This year, we’re in Minneapolis. The time together has given us...