9 a.m. The day begins with Peak Flow Testing in the Respiratory Therapy Department on the 5th floor. JimBob is an old pro at PFTs. PFTs are a hallmark data point for every patient with ALS, and the test is repeated at every ALS appointment. ALS causes neuromuscular...
Robb Elementary School, Uvalde, Texas, May 24th, 2022... When there are no more words to approximate the utter gut-wrenching anguish of a desperately grieving parent, whose child has been slaughtered, at school, during reading group, or a spelling test... When the...
The National Institutes of Health in Bethesda, Maryland is the world's largest center for biomedical research. The NIH is comprised of 27 clinical centers, among them the NINDS, or the National Institute of Neurologic Disorders and Stroke. The NINDS has an enticing...
Yesterday, May 12, 2022, my mom would have been 93 years old. Peggy and I were on the National Mall with Lefty and Righty planting 6,000 flags to honor people living with ALS, and people who have passed away from ALS. Each flag bore a name and a date of diagnosis. A...
"I hope you know how loved you are!" "You are so loved." "People love you." Over and over and over again I have received these sincere exclamations that are meant to remind me of the bountiful love that surrounds me. I am most often without adequate words in response....
Today, we mark two years since our beloved Jim passed away. Our Plews-Ogan family, including Rowan and baby Phoebe, Erin and Hal, and Will and Monika, are gathering for the weekend as we will every year. This year, we’re in Minneapolis. The time together has given us...